Wednesday, 17 June 2015

Somethings are.....

just no coincidence. Or? You know right from the after the accident. I truely believed things really happen for a reason. Too many things to call it coincidence like:

The driver was twice as old as Meg was, came from a place we had to go for rehabilitation. He studied neurology, etc. The emergency docter was named "drs Engel " = angel in Dutch. A phone number of a paragnost, which I got from a lady, I never saw her back, after she gave me a card with the number including money to me... was it again an angel?  That visit gave me sttrength and hope. I can go on for a long time, even last week is it coincidence or not?

Since Monday June 8th 2015 Meg is going back to school again. Finally!! We  have been asking for it since March, She needs contact with same aged chidren and I was quirious to know if she was stil able to do maths or learn things like English etc. So on this Monday she went to this special Mythyl school on the same grounds as her clinic. Last year the accident was on Friday so she missed last weeks before the summervacation started. This year, exactly a year, later she is going back to school until the summervacation starts again. Continuing as if she never stopped at school... a sabbatical year. a closed circle, life goes on again.

We stil need to see how she wil do in class... can she stay focussed? Can she learn new things in her short term memory? She is now 2 hrs per day in the class with now 10 children aged 12-15 yrs, most of themb have epilepsy and look like 'normal' kids. Don' get me wrong here when I use the term 'normal' kids. For us we never had much/ close contact  or experience with children in wheelchairs  and their daily life with therapist, forms that need to be filled and every organisation asking for all medical infromation. (Where is her privacy???) We have fallen in a new small world a different society. The world of the disabled. And I never knew there are so many different disabilities but I am getting used to it. Also when going out with Meg, the behaviour of people is so (hopefully not on purpose)  rude. They ignore to react to their children when they say something about Meg out loud ... as if we cannot hear. Some think Meg is stupid, but she is not, she just cannot talk with her voice, Therefor she has the speaking computer. I always try to involve Meg in the talk.

The rehabilitation/ school area, is pretty "Safe" I mean people are used to see kids in wheelchairs, wearing braces, have spasm, etc. Harder is being in the "normal" places like our village , ( I never really realised how bad some pavements are) And crossing the railways? Not possible at the station... there are only stairs, so we need to walk to a road crossing section....

Last weekend we rented a wheelchaircar, it was a great feeling, this "freedom", in transport. Me driving her myself , not a stranger. I took her home on Friday as we had a surpriseparty organised for Armand 's 50th Birthday. He slept the night before his birthday at the hospital, (due to kidneypains) but he descided he was good enoug to have a party.  Janna baked him a special minion cake.

I took Meg back to the clinic to sleep. Even being at home confronting things happen. Simple thing like going into the garden.... not possible for Meg. We have steps and heightlevels in our garden. She didn't cry about it, but I saw on her face she forgot she cannot go :(

Sunday June 14th I was there again in the morning to pick her up. A delegation of the Hockey club she is stil a member of, came to visit her/ us. She smiled from ear to ear when she got a training vest with her name and club name on it. Plus training trousers too. No need to tell she wanted to wear them today ;-) Thank you!

After the summerstop we wil go and see a hockey game, for now the season has ended and I think it is also very confronting for her, plus transport is stil an issue.

In the afternoon we went to a performance of Janna's flamengo. She started in September and this was a show from all felmengo groups of her teacher. Amazing to see. Felt like being in Spain.

Janna  with a stunning hairstyle and dress in the middle. Proud <3

The gitar player , Rezar, said before he started playing an intro it was specially dedicated to Meg as he heard lots about her from his pupil Lucas. He played a special song called, "Volver" means coming back. Touching song and gesture, Thanks!
After dinner I took Meg back to her room in the clininc.. I was super tired. On Monday I slept 4 hours at a stretch between 11-15h, I really needed it, It wil be a calm week for me that I do know, no wild plans, hihihi.

Thursday June 18th we wil need to go to the hospital for a day. Finally Meg's PEG sonde is going to be removed. YES!! We waited also long for this to be removed. It wil be a simple small surgery, they say.... fingers crossed xxx. Again a little step to "like before but different"

We are now waiting for the insurance to give greenlight for a wheelchair van... and when they say Yes it wil most probably take another 3-4 months before we can actually drive in it....  :(

Meanwhil I lwant to make plans for the summertime, but so many things stil needs to be organised first,, sigh..  wel one day after another...

1 comment:

  1. Oh Kim, wat een weg hebben jullie al afgelegd samen! En er is nog een hele weg te gaan maar fijn om te horen dat ondanks alle onzekerheid van alle instanties en toestanden er zo positief in blijven. Er is ook maar één weg hé dus het kan ook niet anders maar ik kan begrijpen dat je daar dan soms moedeloos van wordt. Wat een kanjers zijn jullie! Ik geloof ook dat de kracht van het positief denken een hele goeie invloed is geweest op het herstel van Meg en daar heb jij vooral een heel sterk staaltje van laten zien meid! Heel veel bewondering voor je wilskracht!
    Ik denk vaak aan jullie! XO


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