Talks talks and decisions

So far this week was a week with many talks. On Monday we had a meeting with the rehabilitation doctors, Meg's psycholoog, social worker, nurse and us, parents. Talking about the last  9 (!) weeks . The time since Meg arrived here at Adelante. A lot of things happened, but also still a long way to go. Most probably Meg wil need an electrical wheelchair as she can only use her right arm. I hope we can test if Meg can handle driving it by herself. When we know  that for sure we can order one soon.

Such talks are a pull back to reality for me plus a "fight" against the prospections. No one can vieuw in future and ofcourse I know Meg wil never be the same as before, but I do keep my dream of her future as open as possible, not adding any label on her yet. I believe in the strength of visualisation and positive vibes and common sense too, but also Meg is showing huge will to survive and works very hard. I hope she wil surprise many. I humbly ask you all again to pray for full recovery.

On Tuesday in the morning I had a talk with the sales representer of the speaking computer. We adjusted the computer to Meg's possibilities at this moment. Typing is going faster as in the beginning :) In the afternoon the neurologist from the hospital came and checked Meg's reactions. He had an idea to treat her toe and leftarm with Botox to weaken her spasm, I don;t feel right about it. I think there are other options/ possibilities before doing such drastic thing  (again).  I cannot find any scientifical report/ research about the reactions/ longtime effect to botox with children under 18. If any one knows please let me know. I am happy to read. I want the best for Meg and I am not a scientific doctor or so. We raised our children without much medicins other as as much homeopathical  or giving the body time to heal. I know the whole world doesn't have time as economy is more important and everything need to go fast and faster, but some things....  with patience, love and therapy.... It is just I don't have experience with braindamage...

Wednesday I decided to visit a museum called: "de kantfabriek" a special international felt exposition was there and it made my heart beat faster again, got inspired!  And the hour drive from our place to get there, it was over faster as thought as I loved the drive, seeing more as only the distance between where I sleep and you are... . My mother was with you, Meg, when a podiatrist came for your toenail. You started crying when she came in, hope I didn't scare you, when I told you she was coming to place a special little wire brace on your nail... Grandma told me when she was working on it you undergo it calmly. Proud of you girl!

Thursday, (today) You were on attached on the "stand-table"  you are now at 70 degrees vertical. for 30-45 minutes way to go! By the way, you really grown huge Meg <3

I also heard next week you will be testing an electrical wheelchair. Jippy!  Will give you more autonomy about where you want to be in the building. Fingers crossed you still have insight in depth and heights and you know to avoid bumping into things or the smaller kids... but guess practice will tell.....  You wil get a wheelchair drivers licence :)

Now on my way again, Thursday isn't over yet... Hope to get many reactions about botox experiences.Thank you in advance.

Til next post!

Your Wheelchair and more

Yesterday was a day I took a step back form being with you Meg, I just had to as I stil have this cold and not feeling well. So in the morning  your father was there to be with you during the therapy. Fysiotherapy, ergotherapy and speech/ communication therapy. You wil be going to get a very special portable computer. Here you can type words and  a voice wil speak it out for you. when we buy a simcard to it too, you wil even be able to send sms text messages! Your eyes starated glazing while hearing that  :)  However it is a costly thing and a delivery time between ordering and delivery is 2 weeks, but due to first needing a agreeding with insurace it wil most probably take 6 weeks at least... many froms to fill in.... i hope you won;t be needing it by then... that you are able to speak again...

A second problem is your wheelchair it is now a borrowed one from this centre, but since a few days you cannot sit long in it anymore, Did you grow so much lately??? Or is the seat to slippery?? You wil need a personal one, adjusted to your needs and messurements, but who wil pay for it? One says you need to ask the special desk in the cityhall of our village. Only rules changed since January 1th, 2015....  I think before we get an answer we wil be weeks further...... and then ordering  one... fitting, adjustments.... I forsee  you wil be laying in bed only as sitting in the wheelchair now isn't comfortable to do long... sigh.

In the afternoon Jacqueline and her daughter were with you while I was in my appartment, cleaning, relaxing and talking with  E. whom came for a visit to me. It felt good to really talk in person to someone, instead of through chat, whatt's app or fb, Words cannot be mis understood as the expression of a face is there too. I missed this kind of visits. Visit in Meg's place is different, I want to keep away sorrows and chocking things from" Meg's bed" as much as possible.  Dear Meg, you don't even know everything about what happend to you. We told you,  you had a car accident while crossing the street, The psycologist asked you Meg now you know this are you angry? answered  by looking to No. Are you sad about it? Yes.

I am very proud you weren't angry when you found out about the accident. I cannot be angry either. It was an accident, one with too many "coincidences ". It could have been me driving there too,  having to deal now with what is happening with you now, The person whom hit you is also a victim of the situation. He was brave enough  to get in contact with us asking how you were doing. We had a good talk before we took him to you back then in the mediumcare section. The only strange thing in that situation is we never heard anything from the first car whom started crossing the street and stopped when he saw that car coming. I think you just thought it was safe to start cycling, crossing the road when he started driving.....  you not noticing he stopped.......

Anyway back to yesterday, While I was in the Ronald McDonald appartment C. came, asking if I could come down for a minute, You were there, pointing you wanted to go up..... You knew where I was staying! I had taken you there  before once and last Saturday your father and aunt took you here too, just for very short time. We pushed you up the hill went inside and took off the coat and blankets, Time for some drinks :) you noticed a Lego freinds building and wanted to see how it was build, You always loved playing with Lego.

After your dinnerbreak I arrived at your room and seeing your smile when you see me is always giving me so much energy, made my headache go away too. I asked about your day, you answered with a thumb up = Yes or a hidden thumb = No.
You have one super favourite programm at tv it is a Dutch teenager program called: Spangas. It is about students in your own age at highschool. www.spangas.nl It starts at 18,55 and when I forget you know how to make it clear to me, asking for the controller and adding three fingers in the air. Your grandmother took a lollipop with her day before yesterday and now everytime we watch spangas you want it.... adding it in your mouth by yourself, like a teenager :)  makes me really happy you are able to do so again. I know you are back, never been away, it is just your body which needs to learn things again... but I am in good hope and trust you wil manage.